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Misconceptions & Judgements Made About CFS  

Title: Misconceptions & Judgements Made About CFS

Misconceptions & Judgements Made About CFS

Posted By: Dayna

       
Sharon Kirk PhD - author of  

Title: A Tribute to Dr. Sharon Kirk

Sharon Kirk PhD - author of "When I Cry Wolf: A Society Lost To Chronic Fatigue Syndrome & Mold"

Posted By: Michelle Roy

       
Talking about my life  

Title: Me Talking About My Life & CFS

Talking about my life

Posted By: Dayna

       
Describing a little about me and my struggle with CFS  

Title: Part 2 My Storm With CFS (Redone)

Describing a little about me and my struggle with CFS

Posted By: Ana

       
CFS Frusrations & Update  

Title: CFS Vent & Update

CFS Frusrations & Update

Posted By: Dayna

       
Meds & Supplements I use to Manage my CFS/ME  

Title: Meds & Supplements I Use to Manage my CFS

Meds & Supplements I use to Manage my CFS/ME

Posted By: Dayna

       
How It Affects My Daily Life  

Title: Explaining Orthostatic Intolerance

How It Affects My Daily Life

Posted By: Dayna

       
My symptoms and such  

Title: Part Two of how CFS Has Affected My Life

My symptoms and such

Posted By: Dayna

       
Inspirational video about Immunovir and me.  

Title: Just As I Am W/CFS/ME

Inspirational video about Immunovir and me.

Posted By: Ana

       
A brief description of some basic facts about M.E. and my experience for the last 13 years  

Title: Some Facts About Myalgic Encephalomyelitis (and me)

A brief description of some basic facts about M.E. and my experience for the last 13 years

Posted By: Ana

       
I describe on youtube  

Title: CFS / ME & discussing a try w/Immunovir

I describe on youtube

Posted By: Ana

       
Me Talking About my CFS and an idea  

Title: Me Talking About my CFS and an idea

Me Talking About my CFS and an idea

Posted By: Dayna

       
Video testimony of my experiences living with severe ME/CFS - Presented to the CFS Advisory Committee October 2009 meeting  

Title: Laurel's October 2009 CFS / CFSAC Testimony

Video testimony of my experiences living with severe ME/CFS - Presented to the CFS Advisory Committee October 2009 meeting

Posted By: Dominique

       
Marly Silverman testimony on October 29, 209 to the CFS Advisory Committee. Her testimony touched the 3 R's - Reconciliation, Restore or Repair, and Resolve. You can read her complete testimony at PANDORA's web site www.pandoranet.info or at the CFSAC web  

Title: Marly Silverman, Founder of P.A.N.D.O.R.A., Testimony to the CFSAC

Marly Silverman testimony on October 29, 209 to the CFS Advisory Committee. Her testimony touched the 3 R's - Reconciliation, Restore or Repair, and Resolve. You can read her complete testimony at PANDORA's web site www.pandoranet.info or at the CFSAC web

Posted By: Marly Silverman

       
A small group of inconsequential people who I just happen to love!  

Title: My Family

A small group of inconsequential people who I just happen to love!

Posted By: Lee Miller

       
Another Montage I've been making over the last week or so that I hope you will all enjoy, I know my wife did when she saw it!  

Title: ME / CFS Photo Montage

Another Montage I've been making over the last week or so that I hope you will all enjoy, I know my wife did when she saw it!

Posted By: Lee Miller

       
I recently had an appointmet with a neuro-psychologist. In this video I talk about the results of the tests  

Title: Appointment With A Neuropsychologist

I recently had an appointmet with a neuro-psychologist. In this video I talk about the results of the tests

Posted By: Paul Winter

       
Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young artist Leia is back with an update on how things are going in her personal battle against these  

Title: Life After CFS - Leia Jobe update after PANDORA's Video Contest

Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young artist Leia is back with an update on how things are going in her personal battle against these "i

Posted By: Marly Silverman

       
Photo montage with music of how a severe CFS/ME patient may feel after years (or even decades) of psychiatric abuse, neglect and general medical incompetence.  

Title: A Day In The Life of Chronic Fatigue Syndrome

Photo montage with music of how a severe CFS/ME patient may feel after years (or even decades) of psychiatric abuse, neglect and general medical incompetence.

Posted By: Lee Miller

       
This clip discusses Dr Oz, the woman named Gina and the subject of XMRV; the linked Retrovirus of Chronic Fatigue Syndrome, Fibromyalgia and possibly even autism and chronic Lyme disease, as well as POTS.. So many things!!  

Title: Dr. Oz on XMRV CFS Retrovirus - Empowerment Series by Dr. Frank Dolan

This clip discusses Dr Oz, the woman named Gina and the subject of XMRV; the linked Retrovirus of Chronic Fatigue Syndrome, Fibromyalgia and possibly even autism and chronic Lyme disease, as well as POTS.. So many things!!

Posted By: Dr. Franky Dolan

       
Finalist #2. Category Fibromyalgia. Producer & Director: Leia Jobe. Heart wrenching pictures of the frustration, sensual loneliness, and rebellion experienced by a young artist who was diagnosed with CFS/FM at age 18 after a viral infection.  

Title: PANDORA's International Video Advocacy Contest

Finalist #2. Category Fibromyalgia. Producer & Director: Leia Jobe. Heart wrenching pictures of the frustration, sensual loneliness, and rebellion experienced by a young artist who was diagnosed with CFS/FM at age 18 after a viral infection.

Posted By: Marly Silverman

       
Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young ...  

Title: CFS Update

Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young ...

Posted By: Leia

       
It was not my intent to make this video during one of my  

Title: Dan on His ME/CFS

It was not my intent to make this video during one of my "wobbly" pre- and post-crash periods, but it happened. During a crash, I am virtually comatose. Feel free to copy and re-post this video to show others what a "mild" case of ME/CFS looks like.

Posted By: Dan Moricoli

       
This is a video testimony of my experiences living with severe ME/CFS, created for the CFSAC October 2009 meeting. Since I am unable to speak above a whisper, my sister-in-law did the voice over to the original video, which can be seen here: http://www.yo  

Title: My CFS / CFSAC Video Testimony (no voice over)

This is a video testimony of my experiences living with severe ME/CFS, created for the CFSAC October 2009 meeting. Since I am unable to speak above a whisper, my sister-in-law did the voice over to the original video, which can be seen here: http://www.yo

Posted By: Laurel B.

       
This is a video testimony of my experiences living with severe ME/CFS. It was created in order to present to the October 2009 CFS Advisory Committee's meeting. I am unable to speak more than a few words above a whisper, so my sister-in-law very graciously  

Title: My CFS / CFSAC Video Testimony

This is a video testimony of my experiences living with severe ME/CFS. It was created in order to present to the October 2009 CFS Advisory Committee's meeting. I am unable to speak more than a few words above a whisper, so my sister-in-law very graciously

Posted By: Laurel B.

       
After much soul searching I have found out the cause of my illness.  

Title: They were right! It is all in my head!

After much soul searching I have found out the cause of my illness.

Posted By: Paul Winter

       
The last part of my ME story.  

Title: M.E. And Me Part 3

The last part of my ME story.

Posted By: Paul Winter

       
Part 2 of a series of 3 videos telling my story. Recorded in 2007  

Title: M.E. And Me Part 2

Part 2 of a series of 3 videos telling my story. Recorded in 2007

Posted By: Paul Winter

       
This is the first of 3 videos I made back in 2007, that describe how my illness started. Things have continued to progress since then.  

Title: M.E And Me Part 1

This is the first of 3 videos I made back in 2007, that describe how my illness started. Things have continued to progress since then.

Posted By: Paul Winter

       
A video about severe M.E./CFS and why we are asking you to use your moments to volunteer to help us out of our darkness. 28 million voices will be heard. Visit our website at http://www.blueribboncampaignforME.org  

Title: Voice 4 A Cure

A video about severe M.E./CFS and why we are asking you to use your moments to volunteer to help us out of our darkness. 28 million voices will be heard. Visit our website at http://www.blueribboncampaignforME.org

Posted By: Andrea Martell

       
The Flying Monkeys of Burlington Vermont  

Title: We're Not In Kansas Anymore

The Flying Monkeys of Burlington Vermont

Posted By: Rik Carlson

       
Dear President Obama & VP Biden  

Title: Dear President Obama & VP Biden

Dear President Obama & VP Biden

Posted By: Mary Schweitzer

       
A message of hope, courage and defiance from Greg Crowhurst, the husband of Linda Crowhurst, a ME/CFS sufferer from England.  

Title: Fighting for Recognition of ME/CFS: A Defiant Caretaker's Song

A message of hope, courage and defiance from Greg Crowhurst, the husband of Linda Crowhurst, a ME/CFS sufferer from England.

Posted By: Marly Silverman

       
The story of a prominent businessman in Vermont, whose successful life was interrupted by chronic fatigue syndrome (CFS). The video highlights the special connection to  

Title: Monkeys with Wings - Winner - PANDORA International Video Advocacy Contest

The story of a prominent businessman in Vermont, whose successful life was interrupted by chronic fatigue syndrome (CFS). The video highlights the special connection to "monkeys with wings"- (gargoyles) strategically placed at his place of business and ho

Posted By: Marly Silverman

       
The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia. Her mother's concern, love and caring support touches the heart of every parent who has a child diagnosed with fibromyalgia. Holly's supporting  

Title: Living with Fibromyalgia - 2007 PANDORA International Advocacy Video Contest

The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia. Her mother's concern, love and caring support touches the heart of every parent who has a child diagnosed with fibromyalgia. Holly's supporting

Posted By: Marly Silverman

       
A moving, frightening, video by Sophia's mother on the treatment and subsequent death of her daughter. See Links at www.cfsKC.com for the website and more information.  

Title: What Happened to Sophia Mirza who died from ME/CFS

A moving, frightening, video by Sophia's mother on the treatment and subsequent death of her daughter. See Links at www.cfsKC.com for the website and more information.

Posted By: Dan Moricoli

       
I love this personal video. There is nothing fancy about it, but it is wonderfully honest. I don't know the woman's name so I can't yet properly credit her, but I would love to meet her.  

Title: CFS CFIDS ME

I love this personal video. There is nothing fancy about it, but it is wonderfully honest. I don't know the woman's name so I can't yet properly credit her, but I would love to meet her.

Posted By: Dan Moricoli

       
A personal video with excellent music and visual images produced by fogggyrl  

Title: The Realities of ME CFS

A personal video with excellent music and visual images produced by fogggyrl

Posted By: Dan Moricoli

       
A personal view of the symptoms of ME by a young woman in the UK  

Title: Living with M.E. - My Diary

A personal view of the symptoms of ME by a young woman in the UK

Posted By: Dan Moricoli

       
A beautifully produced personal video by Hanna McKearnen  

Title: Suffering from M.E.

A beautifully produced personal video by Hanna McKearnen

Posted By: Dan Moricoli

       
Clare, a young, bedridden woman talks about the realities of her life with ME  

Title: UK Documentary on ME

Clare, a young, bedridden woman talks about the realities of her life with ME

Posted By: Dan Moricoli

       
Leia's beautifully produced story of her bout with CFS  

Title: Chronic Fatigue Syndrome by Leia Jobe

Leia's beautifully produced story of her bout with CFS

Posted By: Dan Moricoli

       
The immensely talented Leia Jobe, who has both CFS and FM created this video on FM for PANDORA (http://pandoranet.info/). Please take a moment to view this very stirring video.  

Title: PANDORA FM Video produced by Leia Jobe

The immensely talented Leia Jobe, who has both CFS and FM created this video on FM for PANDORA (http://pandoranet.info/). Please take a moment to view this very stirring video.

Posted By: Dan Moricoli

       
Teas I use in daily life dealing with CFIDS and life in general. Excuse my messy kitchen!  

Title: Teas

Teas I use in daily life dealing with CFIDS and life in general. Excuse my messy kitchen!

Posted By: Dayna

       
I try to word my thought son Healthcare Reform as best I can. Damn CFIDS Brain fogs/farts! But seriuosly use your heads and educate yourself, don't go along ...  

Title: Health Care Reform Thoughts

I try to word my thought son Healthcare Reform as best I can. Damn CFIDS Brain fogs/farts! But seriuosly use your heads and educate yourself, don't go along ...

Posted By: Dayna

       
This is my second time around.Hope you like it.My thinking is NOT good.Bare with me.I feel like my brain doesn't work.  

Title: Second Time Around!!!

This is my second time around.Hope you like it.My thinking is NOT good.Bare with me.I feel like my brain doesn't work.

Posted By: Ruth Nikiforovs

       
My battle with CFS, I may be a bit rusty at this LOL, but over time I will get better.Hope you like it.  

Title: My First Video!!!

My battle with CFS, I may be a bit rusty at this LOL, but over time I will get better.Hope you like it.

Posted By: Ruth Nikiforovs

       
Some great Christian Filming  

Title: The Heart of Texas

Some great Christian Filming

Posted By: Ana

       
Steven Curtis Chapman. Enjoy!  

Title: His Strength is Perfect

Steven Curtis Chapman. Enjoy!

Posted By: Ruth Nikiforovs

       
Just Another Video  

Title: Just another Video!

Just Another Video

Posted By: Ruth Nikiforovs