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Video testimony of my experiences living with severe ME/CFS - Presented to the CFS Advisory Committee October 2009 meeting  

Title: Laurel's October 2009 CFS / CFSAC Testimony

Video testimony of my experiences living with severe ME/CFS - Presented to the CFS Advisory Committee October 2009 meeting

Posted By: Dominique

       
Marly Silverman testimony on October 29, 209 to the CFS Advisory Committee. Her testimony touched the 3 R's - Reconciliation, Restore or Repair, and Resolve. You can read her complete testimony at PANDORA's web site www.pandoranet.info or at the CFSAC web  

Title: Marly Silverman, Founder of P.A.N.D.O.R.A., Testimony to the CFSAC

Marly Silverman testimony on October 29, 209 to the CFS Advisory Committee. Her testimony touched the 3 R's - Reconciliation, Restore or Repair, and Resolve. You can read her complete testimony at PANDORA's web site www.pandoranet.info or at the CFSAC web

Posted By: Marly Silverman

       
I recently had an appointmet with a neuro-psychologist. In this video I talk about the results of the tests  

Title: Appointment With A Neuropsychologist

I recently had an appointmet with a neuro-psychologist. In this video I talk about the results of the tests

Posted By: Paul Winter

       
Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young artist Leia is back with an update on how things are going in her personal battle against these  

Title: Life After CFS - Leia Jobe update after PANDORA's Video Contest

Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young artist Leia is back with an update on how things are going in her personal battle against these "i

Posted By: Marly Silverman

       
This clip discusses Dr Oz, the woman named Gina and the subject of XMRV; the linked Retrovirus of Chronic Fatigue Syndrome, Fibromyalgia and possibly even autism and chronic Lyme disease, as well as POTS.. So many things!!  

Title: Dr. Oz on XMRV CFS Retrovirus - Empowerment Series by Dr. Frank Dolan

This clip discusses Dr Oz, the woman named Gina and the subject of XMRV; the linked Retrovirus of Chronic Fatigue Syndrome, Fibromyalgia and possibly even autism and chronic Lyme disease, as well as POTS.. So many things!!

Posted By: Dr. Franky Dolan

       
Finalist #2. Category Fibromyalgia. Producer & Director: Leia Jobe. Heart wrenching pictures of the frustration, sensual loneliness, and rebellion experienced by a young artist who was diagnosed with CFS/FM at age 18 after a viral infection.  

Title: PANDORA's International Video Advocacy Contest

Finalist #2. Category Fibromyalgia. Producer & Director: Leia Jobe. Heart wrenching pictures of the frustration, sensual loneliness, and rebellion experienced by a young artist who was diagnosed with CFS/FM at age 18 after a viral infection.

Posted By: Marly Silverman

       
Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young ...  

Title: CFS Update

Two years after entering her short films in P.A.N.D.O.R.A.'s video advocacy campaign to raise awareness for Chronic Fatigue Syndrome and Fibromyalgia, young ...

Posted By: Leia

       
It was not my intent to make this video during one of my  

Title: Dan on His ME/CFS

It was not my intent to make this video during one of my "wobbly" pre- and post-crash periods, but it happened. During a crash, I am virtually comatose. Feel free to copy and re-post this video to show others what a "mild" case of ME/CFS looks like.

Posted By: Dan Moricoli

       
This is a video testimony of my experiences living with severe ME/CFS, created for the CFSAC October 2009 meeting. Since I am unable to speak above a whisper, my sister-in-law did the voice over to the original video, which can be seen here: http://www.yo  

Title: My CFS / CFSAC Video Testimony (no voice over)

This is a video testimony of my experiences living with severe ME/CFS, created for the CFSAC October 2009 meeting. Since I am unable to speak above a whisper, my sister-in-law did the voice over to the original video, which can be seen here: http://www.yo

Posted By: Laurel B.

       
This is a video testimony of my experiences living with severe ME/CFS. It was created in order to present to the October 2009 CFS Advisory Committee's meeting. I am unable to speak more than a few words above a whisper, so my sister-in-law very graciously  

Title: My CFS / CFSAC Video Testimony

This is a video testimony of my experiences living with severe ME/CFS. It was created in order to present to the October 2009 CFS Advisory Committee's meeting. I am unable to speak more than a few words above a whisper, so my sister-in-law very graciously

Posted By: Laurel B.

       
The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia. Her mother's concern, love and caring support touches the heart of every parent who has a child diagnosed with fibromyalgia. Holly's supporting  

Title: Living with Fibromyalgia - 2007 PANDORA International Advocacy Video Contest

The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia. Her mother's concern, love and caring support touches the heart of every parent who has a child diagnosed with fibromyalgia. Holly's supporting

Posted By: Marly Silverman

       
The immensely talented Leia Jobe, who has both CFS and FM created this video on FM for PANDORA (http://pandoranet.info/). Please take a moment to view this very stirring video.  

Title: PANDORA FM Video produced by Leia Jobe

The immensely talented Leia Jobe, who has both CFS and FM created this video on FM for PANDORA (http://pandoranet.info/). Please take a moment to view this very stirring video.

Posted By: Dan Moricoli

       
Teas I use in daily life dealing with CFIDS and life in general. Excuse my messy kitchen!  

Title: Teas

Teas I use in daily life dealing with CFIDS and life in general. Excuse my messy kitchen!

Posted By: Dayna

       
I try to word my thought son Healthcare Reform as best I can. Damn CFIDS Brain fogs/farts! But seriuosly use your heads and educate yourself, don't go along ...  

Title: Health Care Reform Thoughts

I try to word my thought son Healthcare Reform as best I can. Damn CFIDS Brain fogs/farts! But seriuosly use your heads and educate yourself, don't go along ...

Posted By: Dayna